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LATEST ON CLINICAL TRIALS

Make a Difference

Donate today and help us  provide support, and information on diagnosis, treatment options, research, and resources for NET patients and caregivers.

LATEST FROM LACNETS

RECENT EDUCATIONAL EVENTS 

LACNETS • "Navigating Clinical Trials: Expectations vs. Realities" with Taymeyah Al-Toubah •Aug 2023
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LACNETS • "Navigating Clinical Trials: Expectations vs. Realities" with Taymeyah Al-Toubah •Aug 2023

Join LACNETS to hear Taymeyah Al-Toubah, MPH, Senior Research Project Manager at the Neuroendocrine Tumor Program of Moffitt Cancer Center. About Our Speaker: Taymeyah Al-Toubah, MPH Senior Research Project Manager Neuroendocrine Tumor Program at Moffitt Cancer Center, Tampa, FL Taymeyah Al-Toubah is a clinical researcher, currently at Moffitt Cancer Center, who has been in the research field for 10 years. She began her career in 2013 while obtaining her bachelor’s degrees in biomedical sciences and psychology, working in pediatric and neonatal research at Johns Hopkins All Children’s Hospital. In 2016, she shifted her career focus to oncology, beginning with phase I trials and working in all solid tumors. She completed her Master of Public Health in Epidemiology in 2017 and focused her graduate thesis on neuroendocrine tumors. In 2018, she switched departments to focus exclusively on NETs. From 2018 – 2023, she was the primary NET coordinator in the GI department, managing all clinical trials while leading the GI team, managing the NET clinic coordination amongst the ancillary departments, and working on all retrospective and non-interventional NET research. She has worked on protocol development, database analysis, and manuscript writing, resulting in over 30 published manuscripts and presented her research at several national and international oncology and NET conferences, with oral abstracts at several ENETS and NANETS conferences. In April 2023, she formally transitioned to a new position as a project manager of the NET program, where she will continue to mentor new coordinators while working on protocol development and writing, manuscript writing, non-interventional clinical trials, and retrospective NET research. One of her first major projects will be to curate and develop a master database of all NET patients seen at her institution that will provide the basis for all future NET research to be published at Moffitt. She is currently on the board of one of the first NET patient advocacy groups in Florida (FLaNET Carcinoid Community), which kicked off alongside the Tampa Regional NANETS meeting in November 2022. She is an active member of NANETS on the Continuing Education and Symposium Planning committees. She plans to dedicate the remainder of her career to this disease and community. Her ultimate plan is to attend medical school, specialize in medical oncology, and continue to serve the academic NET community and patient base as a physician and clinical investigator. For more information, visit LACNETS.org.

LATEST PODCAST EPISODES 

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ABOUT LACNETS

Learn Advocate Connect Neuroendocrine Tumor Society (LACNETS) provides a community of support and education for neuroendocrine tumor (or neuroendocrine cancer or NET) patients and caregivers.

Learn

Our educational programs, including webinars, patient education conferences, a video library, podcast, and blog, provide information on diagnosis, treatment options, research and resources. We develop patient-friendly educational content that brings the latest medical information and research studies to NET patients and caregivers.

Advocate

We advocate for all people impacted by this rare disease to improve health outcomes through early diagnosis. We raise awareness about neuroendocrine and carcinoid cancers among healthcare professionals and with the public.

Connect

Our inclusive global community includes NET patients, family members, and caregivers. LACNETS makes it possible for patients to share experiences, encouragement, and hope through support groups, Health Coaching, and NETCONNECT, a buddy program connecting a newly-diagnosed NET patient with a long-time patient.

Seven Facts About NET

  • Neuroendocrine cancer is also known as neuroendocrine tumor, or NET.

  • NET is a rare cancer. In the United States, 7 in 100,000 people are diagnosed per year. 

  • NET can affect neuroendocrine cells throughout the body.

  • NET is a difficult cancer to diagnose.

  • Some (but not all) NET patients have symptoms from their cancer.

  • The cause of NET is unknown.

  • Seeking the opinion of a NET specialist is important for all NET patients.

PROGRAMS FOR YOU

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I was officially diagnosed on June 29, 2022. I didn’t even know NETs existed. And today...less than a month later, I’ve learned so much thanks to the incredible resources that exist as a result of the beautiful NETs community. The resources available, especially the videos from LACNETS and the NET VITALS document, are so life-giving and helpful for the newly diagnosed. LACNETS contributes so much useful information to the NET community.

— NET Patient

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