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Pheo/Para Resources


"Update on Pheochromocytoma and Paraganglioma: Focusing on Advanced/Metastatic Disease" with Jaydira Del Rivero, MD

Have you wondered if NETs might be hereditary? What do you know about pheochromocytoma and paraganglioma (pheo/para)? NET expert Dr. Jaydira Del Rivero gives a full update on these rare and often misdiagnosed conditions. *This presentation was recorded on February 17, 2022.

Dr. Del Rivero’s presentation slides can be downloaded here.

This presentation is available in Spanish, found here.

"Focus on Pheochromocytoma/Paraganglioma"

Join LACNETS for a unique webinar with a live presentation of three pheochromocytoma and paraganglioma (PPGL) cases and an engaging panel discussion with experts Dr. Jaydira Del Rivero, Dr. Erik Mittra, and Dr. Karel Pacak.

Click here for more information>>

Aimee Powell Shares Her NET Journey 

Aimee Powell, a caregiver and advocate for family members diagnosed with pheochromocytoma and paraganglioma shares what led her to a life of patient advocacy and assisting patients with these rare tumors. Aimee is the founder of The Pheo Para Project –


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The LACNETS Podcast: "Pheochromocytoma & Paraganglioma" with Jaydira Del Rivero, MD

In honor of Pheo Para Awareness Week, NET endocrinologist and medical oncologist Dr. Jaydira Del Rivero of the National Cancer Institute answers ten common questions about pheochromocytoma and paraganglioma (PPGL). Dr. Del Rivero defines PPGL and describes the unique symptoms, genetic testing, and treatment options for PPGL.


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NOTE: Azedra will be discontinued in early 2024. 

Find an AZEDRA treatment site near you

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