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Patient & Caregiver Stories

Watch inspiring stories of strength and resilience from patients and caregivers.

NET Patient, Beth, shares her inspiring story of strength and resilience titled “A Shared Experience.”

NET Patient Kelli shares how she has learned not just to survive, but also to thrive.

NET patient, Eric, shares about his journey and decision-making.

NET Patient, Kelli Edwards, shares her experience with PRRT.

NET patient, Shaunie, & her daughter/advocate, Heather, share about their experience with PRRT.

NET patient, Mary, shares about "scan-xiety," the common anxiety patients sometimes have when undergoing scans.

NET Patient, Cindy, shares about her journey living with high grade neuroendocrine cancer.

NET Patient, Vivian shares her experience with the LACNETS health coaching program.

NET Patient, Laurie, shares about the first year of her NET journey.

NET Patient, Tom, shares his experience with PRRT.

NET Patient, Brent, shares about symptom management.

NET Patient, Cindy, shares how she is thriving as a NET patient.

NET Patient, Mary, shares about her experience in a clinical trial (everolimus or Afinitor).

NET Caregiver, Jack, shares about his experience as a caregiver to his wife who is living with NET.

NET Patient Cindy who is living and thriving with high grade neuroendocrine cancer shares her inspiring story.

NET Caregiver Aimee shares what led her to a life of patient advocacy and assisting patients living with pheochromocytomas and paragangliomas.

NET Patient Tom shares his experience undergoing multiple rounds of PRRT treatments.

NET Caregiver Gilda shares how she has been supporting her husband living with NET

NET patient Michel shares how the lack of information and awareness of his diagnosis inspired him to start a patient support group in Mexico.

NET Patient Julie shares her path to treatment in hopes of providing guidance to newly-diagnosed patients.

NET Patient Denny shares his story of being diagnosed with high grade (grade 3) NET and experience with PRRT.

NET Patient Federico shares his story.

NET expert Dr. Mark Lewis shares how he was diagnosed with NET and how he has been navigating the patient journey.

NET patient Shaunie shares her experience living with Zollinger-Ellison syndrome and a functioning gastrinoma of the pancreas. 

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