About LACNETS
MISSION STATEMENT
The mission of the Learn Advocate Connect Neuroendocrine Tumor Society (LACNETS) is to provide a community of support and education for patients (those with neuroendocrine cancer) and to advocate for all people impacted by this rare disease by expanding awareness and by voicing the patient’s perspective in collaborative dialogue with healthcare professionals.
We aim to improve the quality of life of those with neuroendocrine cancer by offering support and expanded access to information on diagnosis, treatment options, research, and resources. LACNETS makes it possible for patients to share experiences, encouragement, and hope.
We work to improve outcomes for patients through early diagnosis by raising awareness among healthcare professionals and with the public about neuroendocrine and carcinoid cancers.
COMMUNITY
The LACNETS community is both local and global. Our community includes patients, family members and caregivers who attend monthly educational webinars, virtual support groups, and our annual virtual conference.
LACNETS piloted a buddy program called NETCONNECT in 2018 to connect each newly diagnosed patient with an experienced patient.
PATIENT EDUCATION
LACNETS provides ongoing patient education through its monthly educational webinars, as well as the annual LACNETS NET Patient Conference and through extensive online resources. LACNETS patient education efforts impact the lives of over 10,000 patients around the world attending the webinars, conference, and virtual support groups.
HISTORY
Giovanna Joyce Imbesi, a NET patient and patient advocate, founded a non-profit organization named GeneratePossibility in 2012. She launched Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS) to offer Patient Education Speaker Series.
Since 2012, LACNETS has presented leading NET experts in oncology, gastroenterology, radiology, nuclear medicine, clinical trials, pain management, surgery, and psychiatry and has addressed patient concerns about insurance coverage and nutrition. Starting in 2014, the patient educational programs are recorded for a global audience and posted on the LACNETS YouTube Channel.
In November 2022, LACNETS changed its name to Learn Advocate Connect Neuroendocrine Tumor Society.
Contact: info@LACNETS.org
LACNETS is a 501(c)(3) California non-profit corporation.
All or part of your donation may be tax deductible as a charitable contribution.