By now, you’ve probably heard of PRRT. Maybe your doctor recommended it. Or maybe you’ve heard another patient mention it on a discussion board. You may have heard it’s a type of radiation. Or you may have read that it’s a promising new treatment available to NET patients. Right now, these four letters – P-R-R-T– are very powerful letters. They are packed with information and meaning. PRRT is the hottest topic in the NET community, sparking much interest and discussion. This article is intended to give a general overview by answering some frequently asked questions about PRRT. Read more here.
In this third and final part of our NET marathon training series, we will discuss rest and recovery. While putting in mileage (i.e., education, research, medical appointments) is important in marathon training, there is also an art to recovery. Click here to read the full blog post.
In this article, we introduce a new strategy of re-training our body’s natural response to stress. We take the offensive against our stress by first understanding our own individual response to stress, so we can then change the way we react. Click to continue reading.
Every March, thousands gather to run the Los Angeles (LA) Marathon. This annual event serves as a reminder that living with neuroendocrine tumor (NET) is often compared to running a marathon rather than a sprint. While it might be obvious, let’s first talk about what this metaphor means. Click here to read more.
Rare Disease Day is recognized every year on the last day of February to raise awareness of rare diseases. While having a rare disease might not feel like a cause for celebration, it is an occasion for recognition! Read more here.
In the previous blog, “DEAR NEWLY DIAGNOSED NET PATIENT (Part 1): 7 BASIC FACTS ABOUT NET,” you learned some basic facts about NET. One important thing you can do is to take control by becoming your own advocate and leading your health team. Here is a beginner’s guide to NET that provides helpful tips.
In this two-part blog series, we provide a beginner’s guide to NET that addresses some common questions and provides helpful tips. Click here to continue reading.
As a NET patient, you will hear the word “research” used a lot. This can cause confusion, because the word research has two different meanings. Patients often "research" their disease by scouring the internet and/or talking to other patients. Read more here.
When looking for a place to eat, we turn to Yelp. Before purchasing an item, we might first read reviews on Amazon. The internet makes information readily accessible at our fingertips so that we can do our own research. This type of research is educational. When it comes to a health issue such as cancer, we often turn to the internet to learn more about our own disease in order to make the best possible decisions for ourselves. Knowledge is empowering. Read more here.
In the last blog, “Be Inspired,” I wrote that word “inspire” comes from the Latin word “inspirare,” which means “to breathe or blow into.” Since then, I’ve been thinking of what it means to breathe. Click here to read more.