The word “inspire” comes from the Latin word “inspirare,” which means “to breathe or blow into.” For me, an image comes to mind of blowing on a small flame to get a fire going. What is that fire that I am trying to breathe or blow into? It is the flame of hope. In the darkness and storms, hope is the fire that brings light, warmth, and comfort.
Here are some things that may help fuel your flame of hope...
Be Inspired by Patient and Caregiver Stories:
Know that you are not alone…
Five NET patients shared their experiences at the LACNETS 2018 Annual Conference on a range of topics including conversations with caregivers, loved ones & children, the impact of NET cancer, emotional support, how to answer the question, “How are you?” over the years, making plans with uncertainty and priorities, and offering hope:
At the 2017 Annual Los Angeles NET Patient Education Conference, the patient survivorship panel featured stories of courage and hope:
Both patient and caregiver shared about their journey with NET together in April 2017:
Watch this story of Mark who was diagnosed with lung neuroendocrine cancer when he was only 11 years old. Here's how life changed for this husband and dad who is now in his thirties.
Read “A Blessing in Disguise” (NETRF) Read “A Path to Self-Discover & Growth” (NETRF) Read “What Do I Know for Sure about my Survivorship?” (NETRF) Read “Caregivers Perspective in the Art of Giving Yourself Grace” (Healing NET Foundation) Read "National Park Run for Anna Rose and NET Cancer Awareness" (Healing NET Foundation)
Advanced Accelerator Applications (AAA), the company that commercially manufactures NETSPOT® (aka Gallium68 DOTATATE PET scan) and Lutathera® (aka Lu177 DOTATATE, peptide receptor radionuclide therapy or PRRT), released a booklet featuring five NET patient who share their stories and lessons learned along the way: “A Journey of Hope: Toward a Brighter Future in Neuroendocrine Treatment.”
Galaxies of Hope is an app by Novartis that engages users through the art of visual storytelling, sharing the actual words and voices of patients, caregivers, and physicians who are part of the NET cancer community. (Click here for android; click here for google play.)
Be Inspired to Laugh
As former Senator Alan Simpson says, "Humor is the universal solvent against the abrasive elements of life." Laugh with NET patient and comedian Steve Mazan.
Be Inspired by Music
Music is medicine. Listen to these inspirational music compositions by NET patients in our community.
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Be Inspired About How to Live Well With Cancer
Dr. Steven Pantilat, a palliative medicine physician at University of California, San Francisco, shared insights about living well with cancer at the 2018 NorCal CarciNET conference. His inspirational talk, sponsored by NETRF, can be viewed here.
Be The Inspiration:
Spread the inspiration to others by making a donation to LACNETS. Your contribution helps us provide and expand our community of support and education both locally and internationally for patients with neuroendocrine cancer.
THANKS TO OUR SPONSORS
Written by Lisa Yen, NP, NBC-HWC
Director of Programs & Outreach, LACNETS