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EPISODE 12: PHEOCHROMOCYTOMA & PARAGANGLIOMA (PPGL)




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ABOUT THIS EPISODE


In honor of Pheo Para Awareness Week, NET endocrinologist and medical oncologist Dr. Jaydira Del Rivero of the National Cancer Institute answers ten common questions about pheochromocytoma and paraganglioma (PPGL). Dr. Del Rivero defines PPGL and describes the unique symptoms, genetic testing, and treatment options for PPGL.







 

MEET DR. JAYDIRA DEL RIVERO


Dr. Del Rivero earned her medical degree from the University of Veracruz in Veracruz, Mexico and completed her internal medicine residency at Woodhull Medical and Mental Health Center/NYU-Langone Medical Center. 

Dr. Del Rivero completed a fellowship in Endocrinology, Diabetes and Metabolism at The Inter-Institute Endocrinology Training Program (IETP) at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), The National Institute of Child Health and Human Development (NICHD), and The National Institute of Dental and Craniofacial Research (NIDCR) where she was part of a research team developing clinical trials for pheochromocytoma and paraganglioma. She then joined as Assistant Professor at the Montefiore Einstein Center for Cancer Care (MECCC) where she specialized in endocrine oncology involving thyroid cancer, parathyroid and adrenal tumors, and clinical research for gastroenteropancreatic neuroendocrine tumors.


She subsequently completed a second fellowship in medical oncology at the National Cancer Institute (NCI) with a research focus on endocrine malignancies.  Dr. Del Rivero is board certified in Internal Medicine, Endocrinology, Diabetes and Metabolism and Medical Oncology.

Dr. Del Rivero is a Physician Scientist in the Developmental Therapeutics Branch. She is the Principal Investigator of the Natural History Study for Neuroendocrine Neoplasm and Adrenocortical Cancer to provide the basis of further development of therapeutic interventions, prevention/screening guidelines, endpoints for future clinical trials, and patient reported outcome measures. Dr. Del Rivero’s current efforts is the development of novel treatment approaches and targeted therapies for endocrine malignancies such as advanced gastroenteropancreatic neuroendocrine tumors, adrenocortical cancer and pheochromocytoma/paraganglioma. 


 

TOP 10 PPGL QUESTIONS


1. Who should be listening to this podcast episode? Do all NET patients need to know about PPGL?

2. What is PPGL? Is this a cancer? How common is PPGL? How do we know which ones have a higher risk of metastasis?

3. Is this genetic? Who should get genetic testing and when should they get it? Should family members/children get genetic testing or cancer screening?

4. What are the symptoms of PPGL?

5. How is PPGL diagnosed? What labs should be done for PPGL? What scans should I get if have PPGL? Is there a certain priority or order to which scans should get done and when?

6. What is the treatment for PPGL? How do I get appropriate treatment? How do I know what appropriate treatment is?

7. What if my disease is metastatic? What are my treatment options?

8. What if my disease recurs after surgery? What are my treatment options? Could I have surgery again?

9. Will my symptoms be gone after surgery or treatments?

10. I’ve been told I can’t get a biopsy and that surgeries might be dangerous. What do I need to know and what do I need to do?


 

PPGL RESOURCES


PPGL resources page

PPGL blogpost

The Pheo Para Alliance Website





"Update on Pheochromocytoma and Paraganglioma: Focusing on Advanced/Metastatic Disease" with Dr. Del Rivero


Download Dr. Del Rivero’s presentation slides.


This presentation is available in Spanish here.


 

DISCLAIMER


LACNETS Podcasts are created for educational purposes only and do not substitute for medical advice. The views shared in this Podcast are the personal opinions of the experts and do not necessarily reflect the views of LACNETS. Please contact your medical team with questions or concerns about your individual care or treatment.

 


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